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EDITOR: Alice Wong
DATE: June 30, 2020
PAGES: 309

Disability Visibility: First Person Stories from the Twenty First Century

edited by Alice Wong

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent–but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act.

From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.


Includes writing by multiple bisexual/queer writers, including Elsa Sjunneson, Keah Brown, Leah Lakshmi Piepzna-Samarasinha, Shoshana Kessock, A.H. Reaume, and Jillian Weise.

  • Unspeakable conversations / Harriet McBryde Johnson
  • For Ki’tay D. Davidson, who loves us / Talila A. Lewis
  • If you can’t fast, give / Maysoon Zayid
  • There’s a mathematical equation that proves I’m ugly–or so I learned in my seventh grade art class / Ariel Henley
  • The erasure of indigenous people in chronic illness / Jen Deerinwater
  • When you are waiting to be healed / June Eric-Udorie
  • The isolation of being deaf in prison / Jeremy Woody, as told to Christie Thompson
  • Common cyborg / Jillian Weise
  • I’m tired of chasing a cure / Liz Moore
  • We can’t go back / Ricardo T. Thornton, Sr.
  • Radical visibility : a disabled queer clothing reform movement manifesto / Sky Cubacub
  • Guide dogs don’t lead blind people. We wander as one / Haben Girma
  • Taking charge of my story as a cancer patient at the hospital where I work / Diana Cejas
  • Canfei to canji : the freedom to be loud / Sandy Ho
  • Nurturing black disabled joy / Keah Brown
  • Last but not least–embracing asexuality / Keshia Scott
  • Imposter syndrome and parenting with a disability / Jessica Slice
  • How to make a paper crane from rage / Elsa Sjunneson
  • Selma Blair became a disabled icon overnight. Here’s why we need more stories like hers / Zipporah Arielle
  • Why my novel is dedicated to my disabled friend Maddy / A.H. Reaume
  • The antiabortion bill you aren’t hearing about / Rebecca Cokley
  • So. Not. Broken. / Alice Sheppard
  • How a blind astronomer found a way to hear the stars / Wanda Díaz-Merced
  • Incontinence is a public health issue–and we need to talk about it / Mari Ramsawakh
  • Falling/burning : Hannah Gadsby, Nanette, and being a bipolar creator / Shoshana Kessock
  • Six ways of looking at crip time / Ellen Samuels
  • Lost causes / Reyma McCoy McDeid
  • On NYC’s paratransit, fighting for safety, respect, and human dignity / Britney Wilson
  • Gaining power through communication access / Lateef McLeod
  • The fearless Benjamin Lay : activist, abolitionist, dwarf person / Eugene Grant
  • To survive climate catastrophe, look to queer and disabled folks / Patricia Berne, as told to and edited by Vanessa Raditz
  • Disability solidarity : completing the “vision for black lives” / Harriet Tubman Collective
  • Time’s up for me, too / Karolyn Gehrig
  • Still dreaming wild disability justice dreams at the end of the world / Leah Lakshmi Piepzna-Samarasinha
  • Love means never having to say … anything / Jamison Hill
  • On the ancestral plane : crip hand-me-downs and the legacy of our movements / Stacey Milbern
  • The beauty of spaces created for and by disabled people / S. E. Smith.

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